CAJ | 학술논문

目的探讨先大性耳畸形(CEM)患者的健康相关生活质基(QOL)状况,评价全耳廓再造+听力重建手术对患者生活质量的提高所起的作用.方法通过自行编制的先天性外中耳畸形患者生活质量量表,对随机选择的129例CEM患者进行QOL的调查与评估.结果不同畸形程度的患者其生活质量存在差异,单侧耳畸形患者QOL总分为28.5±18.4,而双侧耳畸形为51.6±23.6；患者在接受全耳廓再造+听力重建手术前的QOL总分为21.0±14.0,术后为14.2±9.7,其疾病症状、心理状态、社会交往等方面评分较术前差异有统计学意义.结论 CEM患者生活质量量表能够较为敏感的反映不同畸形程度CEM患者生活质量的差异及其手术前后生活质量的变化,全耳廓再造+听力重建手术对于提高CEM患者的生活质量具有积极意义.
목적 탐토선대성이기형(CEM)환자적건강상관생활질기(QOL)상황,평개전이곽재조+은력중건수술대환자생활질량적제고소기적작용.방법 통과자행편제적선천성외중이기형환자생활질량량표,대수궤선택적129례CEM환자진행QOL적조사여평고.결과 불동기형정도적환자기생활질량존재차이,단측이기형환자QOL총분위28.5±18.4,이쌍측이기형위51.6±23.6；환자재접수전이곽재조+은력중건수술전적QOL총분위21.0±14.0,술후위14.2±9.7,기질병증상、심리상태、사회교왕등방면평분교술전차이유통계학의의.결론 CEM환자생활질량량표능구교위민감적반영불동기형정도CEM환자생활질량적차이급기수술전후생활질량적변화,전이곽재조+은력중건수술대우제고CEM환자적생활질량구유적겁의의.
Objective To explore the congenital ear malformation (CEM)-specific quality of life (QOL) and examine the effects of total ear reconstruction surgery for QOL of CEM patients.Methods A self-composed QOL scale was used for 129 patients with congenital external and middle ear malformation.All patients were requested to fill in the QOL scale before and 1 month after ear reconstruction surgery.Results The level of QOL varied according to the degree of ear malformation.The total QOL score of patients with unilateral and bilateral CEM was 28.5 ± 18.4 and 51.6 ± 23.6,respectively. The total QOL score of patients pre- and post-operation was 21.0 ± 14.0 and 14.2 ± 9.7 respectively. Physiological functions,psychological status and social interactions of the patients were of statistical significance after ear reconstruction surgery compared to that of at pre-operation. Conclusion Congenital ear malformationspecific QOL scale can show sensitively the changes of QOL of CEM patients.And ear reconstruction surgery is beneficial for the patients.