中华医学遗传学杂志
中華醫學遺傳學雜誌
중화의학유전학잡지
CHINESE JOURNAL OF MEDICAL GENETICS
2011年
2期
223-226
,共4页
冯善伟%辜俊梅%李华%黄贵甜%张东木%陈桂兰%屈艳霞%唐盈%江帆%唐林国%吴伟雄
馮善偉%辜俊梅%李華%黃貴甜%張東木%陳桂蘭%屈豔霞%唐盈%江帆%唐林國%吳偉雄
풍선위%고준매%리화%황귀첨%장동목%진계란%굴염하%당영%강범%당림국%오위웅
人口和计划生育服务体系%地中海贫血%群体%干预
人口和計劃生育服務體繫%地中海貧血%群體%榦預
인구화계화생육복무체계%지중해빈혈%군체%간예
family planning service system%thalassemia%population%intervention
目的 依托人口和计划生育服务体系建立地中海贫血(简称地贫)的群体干预模式,达到大幅降低重型地贫患儿出生的目的.方法 以广州黄埔、番禺、增城和天河待孕、已孕夫妇为干预对象,依托人口计划生育公共服务体系进行地贫的宣教、筛查、督促高风险家庭产前诊断及随访的全程管理与服务.结果 试点区建立以人口计生服务体系为主体的地贫宣教、筛查、产前诊断及随访网络,试点2年共有10 695个家庭参与筛查,确诊重症地贫胎儿16例,随访8360例新生儿无重症地贫患儿.结论 依托人口和计划生育服务体系可建立有效的地贫干预模式,实现地贫的主动全程群体干预.
目的 依託人口和計劃生育服務體繫建立地中海貧血(簡稱地貧)的群體榦預模式,達到大幅降低重型地貧患兒齣生的目的.方法 以廣州黃埔、番禺、增城和天河待孕、已孕伕婦為榦預對象,依託人口計劃生育公共服務體繫進行地貧的宣教、篩查、督促高風險傢庭產前診斷及隨訪的全程管理與服務.結果 試點區建立以人口計生服務體繫為主體的地貧宣教、篩查、產前診斷及隨訪網絡,試點2年共有10 695箇傢庭參與篩查,確診重癥地貧胎兒16例,隨訪8360例新生兒無重癥地貧患兒.結論 依託人口和計劃生育服務體繫可建立有效的地貧榦預模式,實現地貧的主動全程群體榦預.
목적 의탁인구화계화생육복무체계건입지중해빈혈(간칭지빈)적군체간예모식,체도대폭강저중형지빈환인출생적목적.방법 이엄주황포、번우、증성화천하대잉、이잉부부위간예대상,의탁인구계화생육공공복무체계진행지빈적선교、사사、독촉고풍험가정산전진단급수방적전정관리여복무.결과 시점구건립이인구계생복무체계위주체적지빈선교、사사、산전진단급수방망락,시점2년공유10 695개가정삼여사사,학진중증지빈태인16례,수방8360례신생인무중증지빈환인.결론 의탁인구화계화생육복무체계가건립유효적지빈간예모식,실현지빈적주동전정군체간예.
Objective To set up thalassemia population intervention model in order to decrease the birth of thalassemia major, relying on population and family planning service system. Methods Pregnant women and their husbands were educated about thalassemia, and participated in screening and prenatal diagnosis if the couple were carriers of thalassemia in the areas of Huangpu, Panyu, Zengcheng and Tianhe districts of Guangzhou. Results The network of thalassemia intervention mainly dependent on family planning service system was set up in these regions. A total of 10 695 families participated in thalassemia screening and 16 thalassemia major fetuses were diagnosed in the last two years. No one was thalassemia major in the 8360 newborn. Conclusion Thalassemia population intervention model was set up relying on family planning service system and it significantly decreased the birth of thalassemia major.
