中华现代护理杂志
中華現代護理雜誌
중화현대호리잡지
CHINESE JOURNAL OF MODERN NURSING
2012年
9期
1001-1004
,共4页
多动秽语综合征%家庭护理(专业)%生活质量%护理评价研究
多動穢語綜閤徵%傢庭護理(專業)%生活質量%護理評價研究
다동예어종합정%가정호리(전업)%생활질량%호리평개연구
Tourette syndrome%Family nursing%Quality of life%Nursing evaluation research
目的 调查家庭干预对抽动秽语综合征患儿生活质量的影响,评价家庭干预对抽动秽语综合征的治疗作用.方法 将200例抽动秽语综合征患儿随机(随机数字法)分为观察组和对照组.观察组100例在常规治疗和护理的基础上实施为期1年的家庭干预,包括家庭教育、家庭访视和如何建立和谐家庭环境及健康生活方式的教育指导；对照组100例仅实施常规治疗和护理.治疗护理干预前后分别运用耶鲁综合抽动严重程度量表、PedsQLTM4.0普适核心量表中文版、少儿主观生活质量问卷对患儿抽动严重程度,主观生活质量及部分功能进行问卷调查.结果 1年后,在抽动次数、频率、强度、复杂性、干扰、损害方面观察组评分均低于对照组(t分别为14.370,20.612,17.677,24.386,11.643,13.972;P均＜0.01).家长报告生理功能、情感功能、社会功能、角色功能评分观察组分别为(90.78±11.32),(88.80±14.43),(76.78±11.30),( 66.80±14.53)分,对照组分别为(80.1±14.23),(58.10±13.32),(58.50±14.32),(52.80±13.15)分,各维度得分两组比较差异均有统计学意义(t分别为5.873,17.563,10.677,7.139；P均＜0.01)；儿童自我评价各维度差异也有统计学意义(t分别为5.967,9.946,7.071,7.379；P均＜0.01).除躯体情感维度外,其余家庭生活、同伴交往、学校生活、生活环境、自我认识、抑郁体验、焦虑8个维度差异均有统计学意义(P＜0.01).结论 家庭干预治疗可明显提高抽动秽语综合征患儿的生存质量及人口素质.
目的 調查傢庭榦預對抽動穢語綜閤徵患兒生活質量的影響,評價傢庭榦預對抽動穢語綜閤徵的治療作用.方法 將200例抽動穢語綜閤徵患兒隨機(隨機數字法)分為觀察組和對照組.觀察組100例在常規治療和護理的基礎上實施為期1年的傢庭榦預,包括傢庭教育、傢庭訪視和如何建立和諧傢庭環境及健康生活方式的教育指導；對照組100例僅實施常規治療和護理.治療護理榦預前後分彆運用耶魯綜閤抽動嚴重程度量錶、PedsQLTM4.0普適覈心量錶中文版、少兒主觀生活質量問捲對患兒抽動嚴重程度,主觀生活質量及部分功能進行問捲調查.結果 1年後,在抽動次數、頻率、彊度、複雜性、榦擾、損害方麵觀察組評分均低于對照組(t分彆為14.370,20.612,17.677,24.386,11.643,13.972;P均＜0.01).傢長報告生理功能、情感功能、社會功能、角色功能評分觀察組分彆為(90.78±11.32),(88.80±14.43),(76.78±11.30),( 66.80±14.53)分,對照組分彆為(80.1±14.23),(58.10±13.32),(58.50±14.32),(52.80±13.15)分,各維度得分兩組比較差異均有統計學意義(t分彆為5.873,17.563,10.677,7.139；P均＜0.01)；兒童自我評價各維度差異也有統計學意義(t分彆為5.967,9.946,7.071,7.379；P均＜0.01).除軀體情感維度外,其餘傢庭生活、同伴交往、學校生活、生活環境、自我認識、抑鬱體驗、焦慮8箇維度差異均有統計學意義(P＜0.01).結論 傢庭榦預治療可明顯提高抽動穢語綜閤徵患兒的生存質量及人口素質.
목적 조사가정간예대추동예어종합정환인생활질량적영향,평개가정간예대추동예어종합정적치료작용.방법 장200례추동예어종합정환인수궤(수궤수자법)분위관찰조화대조조.관찰조100례재상규치료화호리적기출상실시위기1년적가정간예,포괄가정교육、가정방시화여하건립화해가정배경급건강생활방식적교육지도；대조조100례부실시상규치료화호리.치료호리간예전후분별운용야로종합추동엄중정도량표、PedsQLTM4.0보괄핵심량표중문판、소인주관생활질량문권대환인추동엄중정도,주관생활질량급부분공능진행문권조사.결과 1년후,재추동차수、빈솔、강도、복잡성、간우、손해방면관찰조평분균저우대조조(t분별위14.370,20.612,17.677,24.386,11.643,13.972;P균＜0.01).가장보고생리공능、정감공능、사회공능、각색공능평분관찰조분별위(90.78±11.32),(88.80±14.43),(76.78±11.30),( 66.80±14.53)분,대조조분별위(80.1±14.23),(58.10±13.32),(58.50±14.32),(52.80±13.15)분,각유도득분량조비교차이균유통계학의의(t분별위5.873,17.563,10.677,7.139；P균＜0.01)；인동자아평개각유도차이야유통계학의의(t분별위5.967,9.946,7.071,7.379；P균＜0.01).제구체정감유도외,기여가정생활、동반교왕、학교생활、생활배경、자아인식、억욱체험、초필8개유도차이균유통계학의의(P＜0.01).결론 가정간예치료가명현제고추동예어종합정환인적생존질량급인구소질.
Objective To explore and evaluate the effect of family intervention on quality of life of children with tourette syndrome.Methods Total of 200 children with tourette syndrome were randomly divided into observation group and control group.The observation group received conventional treatment and family intervention including family education,family visits and education guidance to build a harmonious family environment and healthy lifestyle,while the control group only received the conventional treatment and care.The therapeutic effects of both groups were assessed by Yale Global Tic Severity Scale (YGTSS),PedsQLTM 4.0 universal core scales score and Children' s subjective quality of life questionnaires.Results One year later,the frequency,intensity,complexity,interference,damage of spasm in the observation group were significantly lower than those of the control group (t =14.370,20.612,17.677,24.386,11.643,13.972,respectively;P ＜0.01 ).The average scores of families report in the observation group in physical function,mental function,social function,role function were (90.78 ± 11.32 ),( 88.80 ± 14.43 ),( 76.78 ± 11.30 ),( 66.80 ± 14.53 ),respectively,which were higher than (80.10 ± 14.23 ),(58.10 ± 13.32),(58.50 ± 14.32),(52.80 ± 13.15 )in the control group,and the differences were statistically significant (t =5.873,17.563,10.677,7.139,respectively;P ＜ 0.01 ). Each dimension score of children self-evaluation in the observation group was significantly higher than that in the control group (P ＜ 0.001 ).There were significant differences in family life,companion contact,life environment,self-cognition,depress experience,anxiety,except the dimension of emotional body( P ＜0.01 ).Conclusions Family intervention can significantly improve the quality of life and the quality of the population for children with tourette syndrome.
