CAJ | 학술논문

目的了解孤独症儿童照顾者照顾负担的现状及相关的影响因素.方法采用多点横断面的调查方法,对长沙市内12家孤独症康复中心的孤独症儿童照顾者发放一般资料问卷、照顾者负担量表(CBI)及儿童期孤独症评定量表(CARS)(其中CARS由康复机构的专业老师针对小孩的具体情况进行填写).结果 177名孤独症儿童照顾者的照顾负担总分为(57.50±14.91)分,在照顾负担的5个维度中,照顾者觉得负担最重的维度是发展受限负担和时间依赖负担.照顾者的年龄、宗教信仰、婚姻状况、工作情况及教育程度及患儿的CARS得分和CARS等级与照顾者负担总分或负担5个维度得分相关(-0.151≤r≤0.282,P＜0.05).结论应重视孤独症儿童照顾者的照顾负担,并根据照顾者的基本情况及患儿的病情严重程度进行个性化的教育和干预.
목적 료해고독증인동조고자조고부담적현상급상관적영향인소.방법 채용다점횡단면적조사방법,대장사시내12가고독증강복중심적고독증인동조고자발방일반자료문권、조고자부담량표(CBI)급인동기고독증평정량표(CARS)(기중CARS유강복궤구적전업로사침대소해적구체정황진행전사).결과 177명고독증인동조고자적조고부담총분위(57.50±14.91)분,재조고부담적5개유도중,조고자각득부담최중적유도시발전수한부담화시간의뢰부담.조고자적년령、종교신앙、혼인상황、공작정황급교육정도급환인적CARS득분화CARS등급여조고자부담총분혹부담5개유도득분상관(-0.151≤r≤0.282,P＜0.05).결론 응중시고독증인동조고자적조고부담,병근거조고자적기본정황급환인적병정엄중정도진행개성화적교육화간예.
Objective To investigate the level of caregiver burden of primary caregivers of children with autism,and explore the factors related to caregiver burden.Methods 177 caregivers of children with autism were tested with caregiver burden inventory(CBI) and childhood autism rating scale(CARS).A cross-sectional and multisite study design was used.Results The scores of caregiver burden was ( 57.50 ± 14.91 ),and time-dependence burden and developmental burden were the most serious domains.Caregiver burden was affected by caregiver's age,caregiver's religious beliefs,caregiver's marital status,caregiver employment status and education degree and children's scores of CARS and degree of CARS( -0.151 ≤ r ≤0.282,P＜ 0.05 ).Conclusion The data suggest that community care workers should pay attention to caregivers of children with autism and give them personalized health education and intervention according to the demographic characteristics of the caregivers and the severity of children disease.