社会保障研究
社會保障研究
사회보장연구
SOCIAL SECURITY STUDIES
2014年
3期
64-73
,共10页
罕见病%大病医疗救助制度%青岛
罕見病%大病醫療救助製度%青島
한견병%대병의료구조제도%청도
rare disease%medical aid system for serious diseases%Qingdao
罕见病群体是一个不可忽视的庞大的社会群体。美国、欧盟、日本、中国台湾等国家和地区都出台了相关法律法规，以提高患者的药物可及性，改善其生存状况等。而到目前为止，我国依然没有罕见病的官方定义和相关法律法规。2012年，青岛市首开先河，建立了大病医疗救助制度，明确将罕见病纳入其覆盖范围之内，其基本上建立了罕见病医疗保障制度。本文将对青岛罕见病医疗保障制度的相关内容、特点、实施情况、发展方向等进行深入分析，以期为完善青岛市罕见病医疗保障制度，促进我国罕见病医疗保障制度的建立提供参考。
罕見病群體是一箇不可忽視的龐大的社會群體。美國、歐盟、日本、中國檯灣等國傢和地區都齣檯瞭相關法律法規，以提高患者的藥物可及性，改善其生存狀況等。而到目前為止，我國依然沒有罕見病的官方定義和相關法律法規。2012年，青島市首開先河，建立瞭大病醫療救助製度，明確將罕見病納入其覆蓋範圍之內，其基本上建立瞭罕見病醫療保障製度。本文將對青島罕見病醫療保障製度的相關內容、特點、實施情況、髮展方嚮等進行深入分析，以期為完善青島市罕見病醫療保障製度，促進我國罕見病醫療保障製度的建立提供參攷。
한견병군체시일개불가홀시적방대적사회군체。미국、구맹、일본、중국태만등국가화지구도출태료상관법율법규，이제고환자적약물가급성，개선기생존상황등。이도목전위지，아국의연몰유한견병적관방정의화상관법율법규。2012년，청도시수개선하，건립료대병의료구조제도，명학장한견병납입기복개범위지내，기기본상건립료한견병의료보장제도。본문장대청도한견병의료보장제도적상관내용、특점、실시정황、발전방향등진행심입분석，이기위완선청도시한견병의료보장제도，촉진아국한견병의료보장제도적건립제공삼고。
There are a great number of People with rare diseases,which could not be ignored in society. In order to improve the patient's medication access and their living conditions,some countries and regions in the world, such as U. S. ,EU,Japan,Taiwan,have introduced relevant laws and regulations. However,so far,there has been no official definition of rare diseases and related laws and regulations in China. Fortunately,last year,Qingdao City, initiated a medical aid system for serious diseases,the first of its kind,explicitly incorporating rare diseases within the scope of its coverage,and at this point it basically has established a medical security system for people with rare disease. This article will analyze the contents,features,implementation and developmental direction of the system for people with rare diseases in Qingdao,providing a reference to improving the system in qingdao,and promoting establishment of rare disease medical insurance system in China.
