中华行为医学与脑科学杂志
中華行為醫學與腦科學雜誌
중화행위의학여뇌과학잡지
CHINESE JOURNAL OF BEHAVIORAL MEDICINE AND BRAIN SCIENCE
2013年
1期
28-30
,共3页
自闭症%主要照顾者%生活质量%影响因素
自閉癥%主要照顧者%生活質量%影響因素
자폐증%주요조고자%생활질량%영향인소
Autism%Primary caregiver%Quality of life%Influencing factor
目的 探讨自闭症儿童主要照顾者的生活质量现状及影响因素.方法 采用健康调查问卷(SF-36)中文版对163例自闭症儿童的主要照顾者进行调查,并进行相关性分析.结果 自闭症儿童主要照顾者的生活质量在多方面受到损害,SF-36各维度得分分别为:躯体功能(PF) (84.69±16.39)分、生理职能(RP) (28.87±22.85)分、躯体疼痛(BP) (64.72±21.85)分、总体健康感(GH) (50.06±21.80)分、生命活力(VT) (42.79±23.42)分、社交功能(SF) (52.76±25.46)分、情感职能(RE) (32.10±22.27)分、精神健康(MH) (46.17±24.43)分.相关分析结果显示其生活质量与主要照顾者年龄、文化程度、家庭月收入及平均每天提供的照顾时间显著相关(P＜0.01)；与患儿年龄、自闭症严重程度、是否在职相关联(P＜0.05)；与患儿性别、参加康复训练时间、是否独生子女、医疗费用类型、主要照顾者性别、民族、婚姻状况、宗教信仰、与患儿关系及家庭居住地无明显相关性(P＞0.05).结论 自闭症对自闭症儿童主要照顾者的生活质量的影响是严重的,需要进行相应干预.
目的 探討自閉癥兒童主要照顧者的生活質量現狀及影響因素.方法 採用健康調查問捲(SF-36)中文版對163例自閉癥兒童的主要照顧者進行調查,併進行相關性分析.結果 自閉癥兒童主要照顧者的生活質量在多方麵受到損害,SF-36各維度得分分彆為:軀體功能(PF) (84.69±16.39)分、生理職能(RP) (28.87±22.85)分、軀體疼痛(BP) (64.72±21.85)分、總體健康感(GH) (50.06±21.80)分、生命活力(VT) (42.79±23.42)分、社交功能(SF) (52.76±25.46)分、情感職能(RE) (32.10±22.27)分、精神健康(MH) (46.17±24.43)分.相關分析結果顯示其生活質量與主要照顧者年齡、文化程度、傢庭月收入及平均每天提供的照顧時間顯著相關(P＜0.01)；與患兒年齡、自閉癥嚴重程度、是否在職相關聯(P＜0.05)；與患兒性彆、參加康複訓練時間、是否獨生子女、醫療費用類型、主要照顧者性彆、民族、婚姻狀況、宗教信仰、與患兒關繫及傢庭居住地無明顯相關性(P＞0.05).結論 自閉癥對自閉癥兒童主要照顧者的生活質量的影響是嚴重的,需要進行相應榦預.
목적 탐토자폐증인동주요조고자적생활질량현상급영향인소.방법 채용건강조사문권(SF-36)중문판대163례자폐증인동적주요조고자진행조사,병진행상관성분석.결과 자폐증인동주요조고자적생활질량재다방면수도손해,SF-36각유도득분분별위:구체공능(PF) (84.69±16.39)분、생리직능(RP) (28.87±22.85)분、구체동통(BP) (64.72±21.85)분、총체건강감(GH) (50.06±21.80)분、생명활력(VT) (42.79±23.42)분、사교공능(SF) (52.76±25.46)분、정감직능(RE) (32.10±22.27)분、정신건강(MH) (46.17±24.43)분.상관분석결과현시기생활질량여주요조고자년령、문화정도、가정월수입급평균매천제공적조고시간현저상관(P＜0.01)；여환인년령、자폐증엄중정도、시부재직상관련(P＜0.05)；여환인성별、삼가강복훈련시간、시부독생자녀、의료비용류형、주요조고자성별、민족、혼인상황、종교신앙、여환인관계급가정거주지무명현상관성(P＞0.05).결론 자폐증대자폐증인동주요조고자적생활질량적영향시엄중적,수요진행상응간예.
Objective To investigate the quality of life (QOL) of the primary caregivers of children with autism and find the influencing factors.Methods 163 caregivers of children with autism were assessed with short form 36 health survey questionnaire(SF-36) in Chinese,and the data were analyzed by correlation.Results The QOL of the caregivers was injured in many fields.The scores of the eight dimensions of SF-36 were listed respectively as:physical functioning (PF) 84.69 ± 16.39,role limitation due to physical health (RP) 28.87 ± 22.85,bodily pain (BP) 64.72 ± 21.85,general health perception (GH) 50.06 ± 21.80,vitality (VT) 42.79 ± 23.42,social functioning (SF) 52.76 ± 25.46,role limitations due to emotional problems (RE) 32.10 ± 22.27,mental health (MH) 46.17 ± 24.43.The QOL of the primary caregiver was closely related to the caregiver's age,educational level,the family economical situation and time of caring (P ＜ 0.01),and also related to the children's age,autism procedure (P＜0.05).There was no relationship betwecn the QOL and the children's gender,time of participating in rehabilitation training,whether the only child or not,type of medical expense,the caregiver's gender,nationality,marital status,religion,relation with the children,and the family residence.Conclusions The QOL of the primary caregivers of children with autism is affected seriously,and should be intervened accordingly.
