CAJ | 학술논문

目的：了解晚期骨肉瘤患者自我感受负担体验及相关影响因素。方法运用质性研究中的现象学方法，对12例晚期骨肉瘤患者进行深入访谈，采用Giorgi现象学研究方法对资料进行分析、整理，提炼主题。结果晚期骨肉瘤患者存在自我感受负担，其影响因素包括疾病转归、经济因素、照护需求及传统死亡观等。自我感受负担对患者自我价值感、治疗及预后造成不同程度的影响。结论晚期骨肉瘤患者普遍存在源于疾病和家属的自我感受负担的痛苦体验，针对不同自我感受负担内容及影响因素，护理人员应该开展有针对性、个性化的健康教育及心理护理。
목적：료해만기골육류환자자아감수부담체험급상관영향인소。방법운용질성연구중적현상학방법，대12례만기골육류환자진행심입방담，채용Giorgi현상학연구방법대자료진행분석、정리，제련주제。결과만기골육류환자존재자아감수부담，기영향인소포괄질병전귀、경제인소、조호수구급전통사망관등。자아감수부담대환자자아개치감、치료급예후조성불동정도적영향。결론만기골육류환자보편존재원우질병화가속적자아감수부담적통고체험，침대불동자아감수부담내용급영향인소，호리인원응해개전유침대성、개성화적건강교육급심리호리。
Objective To understand the experience of self-perceived burden and the related influencing factors in patients with advanced osteosarcoma .Methods Twelve patients with advanced osteosarcoma received the in-depth interview through the phenomenological methods of qualitative research , and the data were analyzed and the theme was refined by Giorgi .Results The patients with advanced osteosarcoma had the experience of self-perceived burden , and its influencing factors included the prognosis of the disease ,the family income,the needs of nursing , the traditional concept of death and so on .The self-perceived burden had effects on the feelings of self-worth, treatment and prognosis at different degrees .Conclusions The patients with advanced osteosarcoma had pain experience of self-perceived burden due to disease and their family , and the nurses should carry out targeted and personalized health education and psychological nursing according to the different the content and influencing factors of self-perceived burden .