中国实用护理杂志
中國實用護理雜誌
중국실용호리잡지
CHINESE JOURNAL OF PRACTICAL NURSING
2014年
18期
12-15
,共4页
宇丽%周其莲%汤玉霞%牛霞
宇麗%週其蓮%湯玉霞%牛霞
우려%주기련%탕옥하%우하
结缔组织病%儿童%家庭%照护%质性研究
結締組織病%兒童%傢庭%照護%質性研究
결체조직병%인동%가정%조호%질성연구
Connective tissue diseases%Child%Family%Care%Qualitative research
目的 探讨慢性结缔组织病患儿家庭照护的体验及感受.方法 采用质性研究中现象学的方法,对30名慢性结缔组织病患儿照护者进行半结构式的访谈,并用Colaizzi分析法进行资料分析.结果 本研究中慢性结缔组织病患儿家庭的照护体验归纳为4个主题:心理负担过重,疾病影响家庭生活,疾病的不确定感、需求社会支持.结论 在研究和关注儿童健康问题的同时,不应忽视家庭照护者所承受的负担及相关问题,并为之提供有效的干预手段,以提高患儿及其照护者的健康水平.
目的 探討慢性結締組織病患兒傢庭照護的體驗及感受.方法 採用質性研究中現象學的方法,對30名慢性結締組織病患兒照護者進行半結構式的訪談,併用Colaizzi分析法進行資料分析.結果 本研究中慢性結締組織病患兒傢庭的照護體驗歸納為4箇主題:心理負擔過重,疾病影響傢庭生活,疾病的不確定感、需求社會支持.結論 在研究和關註兒童健康問題的同時,不應忽視傢庭照護者所承受的負擔及相關問題,併為之提供有效的榦預手段,以提高患兒及其照護者的健康水平.
목적 탐토만성결체조직병환인가정조호적체험급감수.방법 채용질성연구중현상학적방법,대30명만성결체조직병환인조호자진행반결구식적방담,병용Colaizzi분석법진행자료분석.결과 본연구중만성결체조직병환인가정적조호체험귀납위4개주제:심리부담과중,질병영향가정생활,질병적불학정감、수구사회지지.결론 재연구화관주인동건강문제적동시,불응홀시가정조호자소승수적부담급상관문제,병위지제공유효적간예수단,이제고환인급기조호자적건강수평.
Objective To understand the feeling of family caregiver of children with chronic connective tissue disease (CTD).Methods A semi-structured interview was conducted with 30 family caregivers of children with CTD.Data were analyzed based on Colaizzi's phenomenological research method.Results The family caregiver's feelings were classified into four themes,including heavy psychological burden,diseases affecting family life,uncertainty in illness,demands for social support.Conclusions We should neglect the burden and related problems of caregivers when paying attentions to health problems of children,and supply effective intervention measures in order to increase the health level of children and their caregivers.
