CAJ | 학술논문

目的探讨脑瘫儿童母亲生活质量及其影响因素.方法对123例脑瘫患儿及其母亲发放患儿基本情况调查表和美国简明健康测量量表SF-36,采用自填与访谈相结合的方式进行调查并统计,然后采用t检验、相关分析及单因素方差分析,对其影响因素进行分析；采用多元回归分析方法筛选和分析其生活质量的主要影响因素.结果脑瘫儿童母亲的总体生活质量普遍下降,其中情感职能、活力、总体健康得分最低,分别为55.28、60.49和65.26分.脑瘫儿童母亲生活质量各个维度的相关性分析显示,患儿年龄与总体健康、生理功能、情感职能三个维度呈正相关(相关系数分别为0.213、0.191、0.298,P＜0.05)；患儿病情与除身体疼痛外的其它七个维度呈负相关；母亲年龄仅与社会功能呈正相关(相关系数为0.196,P＜0.05)；母亲文化程度与总体健康、情感职能、社会功能、精神健康呈负相关(相关系数分别为-0.274、-0.312、-0.427和-0.180,P＜0.05).单因素分析显示,患儿年龄、患儿病情、父亲职业、母亲职业、母亲文化程度五个因素对母亲生活质量的影响具有统计学意义(P＜0.05).以生活质量总积分为因变量,多元线性逐步回归分析(Pin=0.05,Pout=0.10)显示,患儿病情、父亲职业两个因素进入多元线性回归方程,差异有统计学意义(P＜0.05).结论患儿年龄、患儿病情、母亲文化程度、母亲职业、父亲职业五项因素是影响脑瘫儿童母亲生活质量的主要因素；针对脑瘫儿童母亲的心理特征,采取综合性全方位的干预措施,可提高患儿康复效果和改善母亲生活质量.
목적 탐토뇌탄인동모친생활질량급기영향인소.방법 대123례뇌탄환인급기모친발방환인기본정황조사표화미국간명건강측량량표SF-36,채용자전여방담상결합적방식진행조사병통계,연후채용t검험、상관분석급단인소방차분석,대기영향인소진행분석；채용다원회귀분석방법사선화분석기생활질량적주요영향인소.결과 뇌탄인동모친적총체생활질량보편하강,기중정감직능、활력、총체건강득분최저,분별위55.28、60.49화65.26분.뇌탄인동모친생활질량각개유도적상관성분석현시,환인년령여총체건강、생리공능、정감직능삼개유도정정상관(상관계수분별위0.213、0.191、0.298,P＜0.05)；환인병정여제신체동통외적기타칠개유도정부상관；모친년령부여사회공능정정상관(상관계수위0.196,P＜0.05)；모친문화정도여총체건강、정감직능、사회공능、정신건강정부상관(상관계수분별위-0.274、-0.312、-0.427화-0.180,P＜0.05).단인소분석현시,환인년령、환인병정、부친직업、모친직업、모친문화정도오개인소대모친생활질량적영향구유통계학의의(P＜0.05).이생활질량총적분위인변량,다원선성축보회귀분석(Pin=0.05,Pout=0.10)현시,환인병정、부친직업량개인소진입다원선성회귀방정,차이유통계학의의(P＜0.05).결론 환인년령、환인병정、모친문화정도、모친직업、부친직업오항인소시영향뇌탄인동모친생활질량적주요인소；침대뇌탄인동모친적심리특정,채취종합성전방위적간예조시,가제고환인강복효과화개선모친생활질량.
Objective To analyze the quality of life (QOL) of mothers of children with cerebral palsy and it's influencing factors.Methods The QOL of 123 children with cerebral palsy and their mothers was assessed a 36-item short form health survey (SF-36) and basic questionnaires combined with interviews.The factors influencing QOL were analyzed with t-tests and one way analysis of variance,and multiple regression analysis was used to determine the main influencing factors.Results Scores on all of the SF-36 items were much lower for mothers of children with cerebral palsy than for mothers of normal children.Average scores in the domains of emotional health,general health and vitality were the lowest (55.28,60.49 and 65.26 respectively).Correlation analysis showed that general health,physical function and role emotions were positively correlated with the child's age.All domains except pain were negatively correlated with the child's condition.Social functioning was positively correlated with the mother's age.The general health,role emotional,social function,and mental health scores were all negatively correlated with the mother's education level.Univariate analysis showed that the child's age and condition,the mother's education level and occupation,and the father's occupation all significantly predicted the mother's QOL.Multivariate regression analysis confirmed that the child's age and the father's occupation had significant predictive power.Conclusions The QOL of the mother of a child with cerebral palsy is mainly influenced by the child's age and condition,the mother's education level and occupation,and the father's occupation.Comprehensive and effective measures should be taken to improve the QOL of mothers of children with cerebral palsy and to improve the efficacy of rehabilitation for children with cerebral palsy.