卫生软科学
衛生軟科學
위생연과학
SOFT SCIENCE OF HEALTH
2013年
3期
129-131
,共3页
罕见病%立法%进展%实践%未来展望
罕見病%立法%進展%實踐%未來展望
한견병%입법%진전%실천%미래전망
rare diseases%legislation%progress%practice%future prospect
随着国际罕见病的立法实践,我国的罕见病立法工作步伐日趋加快.笔者总结了国内罕见病公益组织、罕见疾病防治协会和地方专科分会等机构的发展现状,并对我国罕见病的立法进行进行了梳理回顾和展望.
隨著國際罕見病的立法實踐,我國的罕見病立法工作步伐日趨加快.筆者總結瞭國內罕見病公益組織、罕見疾病防治協會和地方專科分會等機構的髮展現狀,併對我國罕見病的立法進行進行瞭梳理迴顧和展望.
수착국제한견병적입법실천,아국적한견병입법공작보벌일추가쾌.필자총결료국내한견병공익조직、한견질병방치협회화지방전과분회등궤구적발전현상,병대아국한견병적입법진행진행료소리회고화전망.
With the legislation practice of international rare disease, China's rare disease legislation step is speeding up. This paper summarizes rare disease development status of public welfare organization, disease prevention and control association, local specialized branch. Reviews and looks forward to the rare disease legislation.
