中国全科医学
中國全科醫學
중국전과의학
CHINESE GENERAL PRACTICE
2015年
2期
196-198
,共3页
高立%王倩飞%潘兴丽%武艳群%张秋梅%关晶
高立%王倩飛%潘興麗%武豔群%張鞦梅%關晶
고립%왕천비%반흥려%무염군%장추매%관정
三体性 21%先天畸形%疾病负担%生活质量%问卷调查
三體性 21%先天畸形%疾病負擔%生活質量%問捲調查
삼체성 21%선천기형%질병부담%생활질량%문권조사
Trisomy 21%Congenital abnormalities%Burden of illness%Quality of life%Questionnaires
目的:调查济宁地区21-三体综合征患儿致家庭经济负担及精神负担情况。方法2013年1—8月对济宁市78例21-三体综合征患儿的170名陪护人(试验组)及同期济宁市年龄与患儿相仿的、近期无任何重大疾病的100例健康儿童的190名陪护人(对照组)进行问卷调查。采用生活满意度评定量表(LSR)及生活满意度指数 A (LSIA)评定两组陪护人生活满意度,采用症状自评量表(SCL -90)评定两组家庭负担情况。结果试验组农村地区和城镇地区患儿治疗支出占家庭收入的68.56%、55.91%。试验组陪护人 LSR、LSIA 评分均低于对照组(P <0.05);试验组农村地区陪护人 LSIA 评分低于城镇地区,差异有统计学意义( P <0.05);试验组陪护人 SCL -90中躯体化、人际关系、抑郁、焦虑及精神病性5个因子评分均低于对照组,差异均有统计学意义(P <0.05);试验组农村地区陪护人 SCL -90中仅人际关系因子评分高于城镇地区,差异有统计学意义(P <0.05)。结论21-三体综合征患儿不仅会给家庭带来经济负担,更影响陪护人的生活质量及精神健康状况,应该引起足够的重视。
目的:調查濟寧地區21-三體綜閤徵患兒緻傢庭經濟負擔及精神負擔情況。方法2013年1—8月對濟寧市78例21-三體綜閤徵患兒的170名陪護人(試驗組)及同期濟寧市年齡與患兒相倣的、近期無任何重大疾病的100例健康兒童的190名陪護人(對照組)進行問捲調查。採用生活滿意度評定量錶(LSR)及生活滿意度指數 A (LSIA)評定兩組陪護人生活滿意度,採用癥狀自評量錶(SCL -90)評定兩組傢庭負擔情況。結果試驗組農村地區和城鎮地區患兒治療支齣佔傢庭收入的68.56%、55.91%。試驗組陪護人 LSR、LSIA 評分均低于對照組(P <0.05);試驗組農村地區陪護人 LSIA 評分低于城鎮地區,差異有統計學意義( P <0.05);試驗組陪護人 SCL -90中軀體化、人際關繫、抑鬱、焦慮及精神病性5箇因子評分均低于對照組,差異均有統計學意義(P <0.05);試驗組農村地區陪護人 SCL -90中僅人際關繫因子評分高于城鎮地區,差異有統計學意義(P <0.05)。結論21-三體綜閤徵患兒不僅會給傢庭帶來經濟負擔,更影響陪護人的生活質量及精神健康狀況,應該引起足夠的重視。
목적:조사제저지구21-삼체종합정환인치가정경제부담급정신부담정황。방법2013년1—8월대제저시78례21-삼체종합정환인적170명배호인(시험조)급동기제저시년령여환인상방적、근기무임하중대질병적100례건강인동적190명배호인(대조조)진행문권조사。채용생활만의도평정량표(LSR)급생활만의도지수 A (LSIA)평정량조배호인생활만의도,채용증상자평량표(SCL -90)평정량조가정부담정황。결과시험조농촌지구화성진지구환인치료지출점가정수입적68.56%、55.91%。시험조배호인 LSR、LSIA 평분균저우대조조(P <0.05);시험조농촌지구배호인 LSIA 평분저우성진지구,차이유통계학의의( P <0.05);시험조배호인 SCL -90중구체화、인제관계、억욱、초필급정신병성5개인자평분균저우대조조,차이균유통계학의의(P <0.05);시험조농촌지구배호인 SCL -90중부인제관계인자평분고우성진지구,차이유통계학의의(P <0.05)。결론21-삼체종합정환인불부회급가정대래경제부담,경영향배호인적생활질량급정신건강상황,응해인기족구적중시。
Objective To explore the family economic and mental burdens caused by children with trisomy - 21 syndrome in jining City. Methods From january to August 2013,a questionnaire survey in 78 children with trisomy - 21 and 170 their carers( study group)were carried out,100 health children of similar age and 190 their carers( control group)in jining. Life Satisfaction Rating( LSR)scale and Life Satisfaction Index A( LSIA)were used to evaluate the subjectsˊ life satisfaction,Symptom Checklist(SCL - 90)to assess the familiesˊ burdens. Results In rural and urban areas,the pediatric patientsˊ treatment costs accounted for 68. 56% ,55. 91% of the familiesˊ incomes in study group. The LSR,LSIA scores were lower in study group than in control group(P < 0. 05);LSIA score was lower in subjects of rural areas than in urban areas in study group,the difference was significant(P < 0. 05). There was difference in scores of somatization,interpersonal relation, depression,anxiety and psychotism in SCL - 90 between 2 groups(P < 0. 05). The scores of interpersonal relation in SCL - 90 were higher in subjects of rural areas than in those of urban areas in study group( P < 0. 05). Conclusion Trisomy - 21 syndrome children may not only bring economic burdens to their families but also affect their carersˊ QOL and mental health, which should be paid enough attention to.