CAJ | 학술논문

目的：??了解唇腭裂患者的父母生活质量状况，探讨其影响因素，为改善唇腭裂患者父母的生活质量、促进唇腭裂患者健康成长提供理论依据。方法??选取115名唇腭裂患者的父母为试验组，另选198名成人（孩子健康且年龄段与试验组相仿）作为对照组。试验组按照唇腭裂类型分为3个亚组：单纯性唇裂伴或不伴牙槽突裂组（CL）、单纯性腭裂组（CP）、唇腭裂组（CLP），试验组和对照组均按照患者年龄分为4个亚组：0~1岁、1~3岁、3~6岁、>6岁；按照学历分为初中及以下学历、高中及中专学历、大专及以上学历。采用生活质量综合评定（GQOLI-74）量表对试验组和对照组进行测评。使用SPSS?16.0软件进行数据分析。结果??1）试验组与对照组总体及各年龄段的各项得分均无统计学差异。2）不同唇腭裂类型患者的父母GQOLI-74量表各项得分均无统计学差异（P>0.05）。3）3~6岁患者的父母在生活质量总分、心理功能维度及社会功能维度得分上低于>6岁患者的父母（P<0.05），0~1岁、1~3岁患者的父母在社会功能维度得分上低于>6岁患者的父母（P<0.05）。4）大专及以上学历父母的社会功能及物质生活维度得分高于初中及以下学历父母（P<0.05）；高中及中专学历父母的社会功能维度得分高于初中及以下学历患者的父母（P<0.05）。结论??唇腭裂患者父母的生活质量与正常儿童父母无明显差异；低年龄段唇腭裂患者的父母及低学历父母的生活质量需要得到更多的帮助和支持。
목적：??료해진악렬환자적부모생활질량상황，탐토기영향인소，위개선진악렬환자부모적생활질량、촉진진악렬환자건강성장제공이론의거。방법??선취115명진악렬환자적부모위시험조，령선198명성인（해자건강차년령단여시험조상방）작위대조조。시험조안조진악렬류형분위3개아조：단순성진렬반혹불반아조돌렬조（CL）、단순성악렬조（CP）、진악렬조（CLP），시험조화대조조균안조환자년령분위4개아조：0~1세、1~3세、3~6세、>6세；안조학력분위초중급이하학력、고중급중전학력、대전급이상학력。채용생활질량종합평정（GQOLI-74）량표대시험조화대조조진행측평。사용SPSS?16.0연건진행수거분석。결과??1）시험조여대조조총체급각년령단적각항득분균무통계학차이。2）불동진악렬류형환자적부모GQOLI-74량표각항득분균무통계학차이（P>0.05）。3）3~6세환자적부모재생활질량총분、심리공능유도급사회공능유도득분상저우>6세환자적부모（P<0.05），0~1세、1~3세환자적부모재사회공능유도득분상저우>6세환자적부모（P<0.05）。4）대전급이상학력부모적사회공능급물질생활유도득분고우초중급이하학력부모（P<0.05）；고중급중전학력부모적사회공능유도득분고우초중급이하학력환자적부모（P<0.05）。결론??진악렬환자부모적생활질량여정상인동부모무명현차이；저년령단진악렬환자적부모급저학력부모적생활질량수요득도경다적방조화지지。
Objective To investigate the quality of life of cleft lip and/or palate children’s parents and discuss the factors to provide the oretical basis for improving the quality of life of these parents and promoting the healthy growth of children with cleft lip and/or palate. Methods A total of 115 parents whose children had cleft lip and/or palate surgery treatment were selected as the experiment group, and another 198 parents (with healthy children having a similar age with those in the experiment group) as the control group. The experiment group was divided into three subgroups according to different types of cleft lip and/or palate: cleft Lip (CL), cleft palate (CP), cleft lip and palate (CLP). The experiment group and the control group were both divided into four subgroups according to age: 0-1, 1-3, 3-6 years old, and more than 6 years old. The experiment group and the control group were both divided into three subgroups according to education: junior middle school and the following, high school and technical secondary school, junior college degree or above. The GQOLI-74 scale was selected to assess the experiment group and the control group. SPSS 16.0 software was used to analyze data. Results 1) The experiment group had no significant difference with the control group in terms of the overall score and the scores of various children ages. 2) The scores of every item had no significant difference in CL, CP, CLP subgroup (P>0.05). 3) The quality of life scores and scores of psychological function dimension and social function dimension of parents with 3-6 years old patients were obviously lower than those of parents with more than 6 years old patients (P<0.05). The scores of social function dimension of parents with 0-1, 1-3, 3-6 years old patients were obviously lower than those of parents with more than 6 years old patients (P<0.05). The other items had no significant difference. 4) The scores of material life dimension and social function dimension of parents with junior college degree or above were higher than those of parents with junior middle school degree and the following (P<0.05). The scores of social function dimension of parents with high school and technical secondary school degree were higher than those of parents with junior middle school degree and the following (P<0.05). Conclusion No difference was observed in the quality of life between cleft lip and/or palate children’s parents and normal group. The parents with the low age children with cleft lip and/or palate and low-levels of education need more help and support to improve quality of life.