CAJ | 학술논문

目的：了解青春期白血病患儿化疗期间的生存质量和应对方式及父母教养方式的相关性，为临床制定提高患儿生存质量的干预措施提供参考依据。方法采用儿童生存质量普适性核心量表、儿童慢性疾病应对方式量表和父母教养方式问卷，对北京儿童医院血液肿瘤中心85例青春期白血病患儿进行调查。结果青春期白血病患儿化疗期间生存质量较低，生存质量和接受、远离的应对方式呈正相关，相关系数分别为r=0.26~0.48和r=0.33~0.41，P<0.05或P<0.01；和负性情绪反应呈负相关，相关系数r=-0.26~-0.52，P<0.05或 P<0.01；生存质量和父母情感温暖、理解呈正相关，r=0.35~0.54，P<0.05或 P<0.01；和父母惩罚、严厉（r=-0.27~-0.37，P<0.05或P<0.01），拒绝、否认（r=-0.32~-0.54，P<0.05或P<0.01）、过分干涉保护（r=-0.35~-0.46，P<0.01）呈负相关。结论青春期白血病患儿化疗期间生存质量和应对方式及父母教养方式之间具有一定的相关性，在临床工作中应制定具体的护理措施，帮助患儿采取接受、远离的应对方式，帮助患儿父母培养情感温暖、理解的教养方式，避免对患儿过分的干涉和保护，从而提高患儿的整体生活质量。
목적：료해청춘기백혈병환인화료기간적생존질량화응대방식급부모교양방식적상관성，위림상제정제고환인생존질량적간예조시제공삼고의거。방법채용인동생존질량보괄성핵심량표、인동만성질병응대방식량표화부모교양방식문권，대북경인동의원혈액종류중심85례청춘기백혈병환인진행조사。결과청춘기백혈병환인화료기간생존질량교저，생존질량화접수、원리적응대방식정정상관，상관계수분별위r=0.26~0.48화r=0.33~0.41，P<0.05혹P<0.01；화부성정서반응정부상관，상관계수r=-0.26~-0.52，P<0.05혹 P<0.01；생존질량화부모정감온난、리해정정상관，r=0.35~0.54，P<0.05혹 P<0.01；화부모징벌、엄려（r=-0.27~-0.37，P<0.05혹P<0.01），거절、부인（r=-0.32~-0.54，P<0.05혹P<0.01）、과분간섭보호（r=-0.35~-0.46，P<0.01）정부상관。결론청춘기백혈병환인화료기간생존질량화응대방식급부모교양방식지간구유일정적상관성，재림상공작중응제정구체적호리조시，방조환인채취접수、원리적응대방식，방조환인부모배양정감온난、리해적교양방식，피면대환인과분적간섭화보호，종이제고환인적정체생활질량。
Objective To understand the correlation among quality of life, coping style and parental rearing style of adolescent leukemia parents.Methods Eighty-five children with leukemia were investigated by Pediatric Quality of Life Inventory (PedsQLTM 4.0), Coping With a Disease (CODI)and Egna Minnen avBarndosnauppforstran (EMBU). ResuIts The quality of life of leukemia children was low. The quality of life had positive correlation with the coping style of acception (r=0.26~0.48, P<0.05 or P<0.01)and escape(r=0.33~0.41, P<0.05 or P<0.01), while negative correlation with bad emotion(r=-0.26~-0.52, P<0.05 or P<0.01);The quality of life had positive correlation with warm, understanding rearing style of parents (r= 0.35~0.54, P<0.05 or P<0.01), while negative correlation with punishment, rigour (r=-0.27~-0.37,P<0.05 or P<0.01), denial (r=-0.32~-0.54, P<0.05 or P<0.01) and excessive interference and protection (r=-0.35~-0.46, P<0.01). ConcIusion Quality of life have a correlation with coping style and parents rearing. We should make measures to help children have coping style of acception and escape, to help parents culture warm and understanding rearing style while avoid excessive interference and protection to improve children ’s quality of life.