CAJ | 학술논문

目的了解脑瘫患儿家庭亲密度和适应性的现状.方法选择2013年5～11月住院的225例脑瘫患儿及其家庭为研究对象,采用一般资料、家庭亲密度和适应性调查问卷对患儿家庭现状和期望状况进行调查.结果 225例脑瘫患儿家庭中,中间型、极端型、平衡型家庭现状类型比例分别为45.3％(102/225)、33.8％(76/225)、20.9％ (47/225),期望类型比例分别为40.9％ (92/225)、27.6％(62/225)、31.5％(71/225),差异有统计学意义,x2=6.817,P＜0.05.家庭亲密度和适应性量表两个维度得分分别为(64.09±12.23)分和(43.28±9.91)分,期望得分分别为(73.91±9.31)分和(52.73±7.16)分,量表现状得分和期望得分比较,亲密度和适应性差异均有统计学意义,t=-9.049和-10.976,均P＜0.01.母亲文化程度高(F=7.075和8.499,P＜0.01)、不与祖父母住在一起(t=5.925和4.138,P＜0.05)、独生子女(t=5.370和4.652,P＜0.05)的家庭亲密度和适应性得分均相对较高.结论多数脑瘫患儿家庭成员关系疏远、家庭应对能力不佳、家庭功能不良,且脑瘫患儿家庭亲密度和适应性主要受母亲文化程度、患儿是否与祖父母同住、家庭子女数影响,需要早期给予系统的家庭干预,改善家庭功能.
목적 료해뇌탄환인가정친밀도화괄응성적현상.방법 선택2013년5～11월주원적225례뇌탄환인급기가정위연구대상,채용일반자료、가정친밀도화괄응성조사문권대환인가정현상화기망상황진행조사.결과 225례뇌탄환인가정중,중간형、겁단형、평형형가정현상류형비례분별위45.3％(102/225)、33.8％(76/225)、20.9％ (47/225),기망류형비례분별위40.9％ (92/225)、27.6％(62/225)、31.5％(71/225),차이유통계학의의,x2=6.817,P＜0.05.가정친밀도화괄응성량표량개유도득분분별위(64.09±12.23)분화(43.28±9.91)분,기망득분분별위(73.91±9.31)분화(52.73±7.16)분,량표현상득분화기망득분비교,친밀도화괄응성차이균유통계학의의,t=-9.049화-10.976,균P＜0.01.모친문화정도고(F=7.075화8.499,P＜0.01)、불여조부모주재일기(t=5.925화4.138,P＜0.05)、독생자녀(t=5.370화4.652,P＜0.05)적가정친밀도화괄응성득분균상대교고.결론 다수뇌탄환인가정성원관계소원、가정응대능력불가、가정공능불량,차뇌탄환인가정친밀도화괄응성주요수모친문화정도、환인시부여조부모동주、가정자녀수영향,수요조기급여계통적가정간예,개선가정공능.
Objective To explore the family adaptability and cohesion in cerebral palsy children.Methods A total of 225 children were selected in two hospitals of Anhui province from May to November in 2014.Their parents or family primary caregivers were interviewed using Family Adaptability and Cohesion Scale,Second Edition-Chinese version (FACESII-CV) and self-designed general information questionnaire.Results The actual family types of 225 cerebral palsy children families were:102 cases of intermediate type (45.3％),76 cases of extreme type (33.8％),47 cases of balance type (20.9％),while the ideal family types were:92 cases of intermediate type (40.9％),62 cases of extreme type (27.6％),71 cases of balance type (31.5％),it was significant between the actual and the ideal family types (x2=6.817,P＜0.05).The actual and ideal scores of family adaptability and cohesion scale were (64.09 ± 12.23) points,(43.28 ± 9.91) points and (73.91 ± 9.31) points,(52.73 ± 7.16) points,respectively,the difference was significant (t=-9.049,-10.976,P＜0.01).The scores in the family which the mother had a higher culture degree (F=7.075,8.499,P＜0.01),the cerebral palsy children did not live with grandparents (t=5.925,4.138,P＜0.05),the one-child family (t=5.370,4.652,P＜0.05) were higher.Conclusions The relationship between family members are estranged in most cerebral palsy children families,the ability of family coping with stuff is low and the family function is poor,in addition,the family adaptability and cohesion are mainly affected by the mother's culture degree,whether live with grandparents,the number of children.All above these are need to be intervented early to improve family function.