CAJ | 학술논문

目的：了解社区晚期癌症患者家属的主要身心副反应及其产生原因，探索家属需求，促进社区临终关怀事业发展。方法于2014年4—6月，采用立意抽样法，选取在西城区德胜社区卫生服务中心接受过临终关怀服务的16名晚期癌症患者家属进行深度访谈并录音，采用质性研究方法收集、整理资料，并分析、提炼主题。结果纳入的16名患者家属均表现出较严重的身心副反应，主要为：恐惧、悲伤、不舍；焦虑、迷茫、无助；亲人离世后后悔、自责。导致身心副反应产生的原因主要为：为求心安，自家陪床照顾体力不支；请护工照顾效果不满意，更添经济负担；居家照顾能力不及，担心忧虑并存。心理纾解、有经验患者家属的帮助和指导、社区临终关怀服务是其想要得到的主要帮助和支持。结论社区晚期癌症患者家属的身心副反应较严重，希望获得帮助的意愿较强烈，应受到高度重视与关怀。加强疾病相关知识教育和临终关怀服务宣传，培养家属自护能力，是减少患者家属身心副反应的主要途径。
목적：료해사구만기암증환자가속적주요신심부반응급기산생원인，탐색가속수구，촉진사구림종관부사업발전。방법우2014년4—6월，채용립의추양법，선취재서성구덕성사구위생복무중심접수과림종관부복무적16명만기암증환자가속진행심도방담병록음，채용질성연구방법수집、정리자료，병분석、제련주제。결과납입적16명환자가속균표현출교엄중적신심부반응，주요위：공구、비상、불사；초필、미망、무조；친인리세후후회、자책。도치신심부반응산생적원인주요위：위구심안，자가배상조고체력불지；청호공조고효과불만의，경첨경제부담；거가조고능력불급，담심우필병존。심리서해、유경험환자가속적방조화지도、사구림종관부복무시기상요득도적주요방조화지지。결론사구만기암증환자가속적신심부반응교엄중，희망획득방조적의원교강렬，응수도고도중시여관부。가강질병상관지식교육화림종관부복무선전，배양가속자호능력，시감소환자가속신심부반응적주요도경。
Objective To investigate major physical and mental reactions in family members of patients with advanced cancer in communities , the reasons and their needs , in order to improve community hospice care.Methods From April to June in 2014, we selected 16 family members of patients with advanced cancer who received hospice care in Desheng Community Health Service Center of Xicheng District using purposive sampling method , and we conducted in -depth interviews with the subjects and made sound records.Results Severe physical and mental reactions appeared in all 16 subjects, including fear, sadness, hate to part, anxiety, sense of being lost , helplessness and the regret and self -blame after patients′death.The reasons were the pursuit of peace of mind , inadequate physical strength in nursing , the dissatisfaction with the nursing of employed nursing workers , increasing financial burden , inability of domestic care and the coexistence of worry and concern.Support and help should be provided , including mental relief , the help and guidance from experienced persons and community hospice care service.Conclusion Family members of patients with advanced cancer in communities have serious physical and mental reactions and are in bad need of help , thus we should give more attention and care to them.Relevant education and hospice care service publicity should be enhanced , and the self-protection ability of family members of patients with advanced cancer should be cultivated , in order to reduce their side reactions.